Firstly on the 3rd September 2017 our very own MD Neil Lukins will be running the Wigan 10k.
The aim is to raise awareness of Edwards Syndrome.
Edwards’ Syndrome is a serious genetic condition. This is caused by an additional copy of chromosome 18. This is in some or all of the cells in the body.
This disrupts the baby’s normal development and, in many cases, causes them to be miscarried or stillborn. Consequently one in every 12 babies born with Edwards’ Syndrome survives beyond one year.
They will live with severe physical and mental disabilities. Some children do survive to early adulthood. However, this is very rare.
In particular Lexi had a sensory hut in the garden which she loved. Subsequently this was destroyed and we are looking to raise enough funds to replace the hut.
In summary if you would like to donate please click on the link below to donate.
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